Monday, July 25, 2011

On the road again.

And so it starts again. The road trips. I guess they will never really stop will they? When you live with a fatal disease like CHD, they just keep coming.
I was so excited when I found a cardiologist in Idaho falls. Lucky I thought! Only an hour from my house this is amazing. But of course, my heart being so complicated, I'm just not that lucky. But I did finally find an adult congenital heart specialist. So on August 1st its back to Boise I go. I have a feeling this is going to be the pivotal moment in my heart care. The turning point. To what? I'm not sure. But I know this is the moment.
It felt like before, I can feel it something big is coming. It feels the same as before. When I was about to find out if I need open heart surgery. I'm just hoping this doesn't end the same way. And I have a feeling it wont. I have a feeling its a good turning point this time.
After that, it's another road trip. August 2-4 I will be in Salt Lake City for my disability hearing! Its about time! I filed over 2 years ago.
I need to win this as this is the only way I can get insurance. I am scared and nervous. If I don't get this I'm not so sure what I will do. It feels like I'm putting my life in another person's hands for the second time in 2 years. What a weird thing this CHD life is.
But other then that, I am excited to meet a CHD momma Breeanna and her CHDer Averi!!

1 comment:

  1. i hope your feeling is right on! and that this IS a terrific turning point for you. :)

    also hope you win your case. ;)

    soooooooooo glad we are friends!

    xoxo allie :)